Tag Archives: Coeliacs

Review – Newburn Gluten free White Sourdough Artisan Cob

I have been a coeliac for a long time, over 20 years now, and I have seen loads of changes on the food option front which is super, but I never write about it and I’m not entirely sure why because I love reading other peoples reviews and finding out about new products so I though I’d better start.

Now, you have to understand that over the years the offerings of gluten free bread mainly consisted of bread that was as heavy as a house brick or so crumbly that merely picking up a slice can cause disintegration. Also the bread would have to be heated or toasted in order to be edible, and it usually tasted horrid. Trust me, this is not an exaggeration but hings have moved on substantially with loads of main steam companies jumping on the gluten free band wagon which is always a good thing for us coeliacs. So I am sure you can imagine that there was much excitement in the gluten free world when Warburtons announced the launch of their own gluten free range, Newburn,  not least because it was the first proper – i.e. gluten filled -bakery that was tuning its hand to gluten free. The thing that  I miss the most about being gluten free is a fresh crusty white load and here is where Warburtons have cornered a bit of supermarket market. Their brand of Sourdough Cob sells out so quickly at my local Sainsburys that it has become a bit of a treat for me, and I always buy two if they are there. It is very thing I want in my fresh bread, crusty and floury on the outside, beautifully soft on the inside and if I choose to toast it there is the most delicious crunch and it tastes amazing.

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Now before you all start shrieking at the screen that I have fallen prey to hipsterism, yes that is avocado on my toast, just as I have been eating my toast for the last 25 years. See, I’m very old and avocados have been around much longer than Instagram. Newburn also do gluten free Crumpets which I haven’t tried yet and yesterday I got hold of a Orange and Sultana Breakfast Cob, at Waitress, it looks like the Sourdough but sis weet. It was also delicious, not too sweet, just right. I must be honest and say that I ate it straight out of the packet at my desk, no need to toast this delicious offering.

As a side note, I was in  Marks and Spencers recently and saw that they had brought out a gluten free Sourdough loaf, it was so beautiful to look at but it tasted absolutely dreadful, the inside was dry and crumbly, I didn’t even finish one slice before I put the whole lot into the food waste bin. What a shame as M&S are doing so well in the gluten free stakes, they make the best cheesecake and the trifle is delicious. Such a treat.

 

But I can’t help falling in love with you

I love food, I mean everything about it. The history, the preparing, the reading, the eating. It is my passion, and often my reason for being, and it has been for as long as I can remember. I was making choux pastry at 10 years of age, churning my own butter at 11, at 13 I was making hand made filled chocolates, by 14 I had a subscription to US Gourmet magazine, at 16 I decided that I wanted to own my own catering company and live a life revolving around food for the rest of my life. And then life got in the way. A bit of family trauma, a bit of displacement, a violent boyfriend at uni and the diagnosis of coeliacs disease at a time when gluten free bread occasionally still came in tins!

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Picked up those lovely Goodhousekeeping ones on the left at church fete, complete bargain!

A catering company when I couldn’t taste anything seemed crazy so that idea faded away with sadness and instead I ended up working in the nightclub/bar/restaurant industry. It was hard work, fun, crazy, tiring and a complete buzz. My (ex) husband was extremely successful in his field of nightclubs – I think there is a still a plaque dedicated to him somewhere in the bowels of Fabric! – and we spent our spare time, and money, not clubbing but going to amazing restaurants and bars in the Uk and abroad. Foliage at the Mandarin Oriental remains the best food I have ever eaten, Chris Staines we love you!

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The ones I requested as Christmas gifts.

I started hosting dinner parties again. 14 people around a table that took up our whole living room in a our tiny basement flat in Notting Hill was not an uncommon event. 8 courses with a wine flight? I’m your gal. all prepared in a kitchen the size of a small wardrobe – the fridge lived in the hallway. Oh how I loved it. I have collected cookery books as long as  can remember, I never part with any of them, I read the recipes for pleasure, they relax me, always have. I was the odd 12 year old at the library borrowing cookery books and then taking them home to type out the recipes as I couldn’t afford to photo copy them and the internet didn’t exist then.

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Mixers and blenders and whisks, oh my

How could I let this passion slip away from me? I have no idea, it lights me up, makes me feel enthusiastic, it’s my measure of life. if I tire of cookery book I know I have tired of life and am feeling a bit depressed. It is my constant gauge of happiness, its amazing. And yet I never really ever write about it, why? I have no bloody idea so I shall start writing about here, in my tiny space in the internet, and I shall love very single minute of it.

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Fascinating facts about food. I have re read this three times, never gets boring.

I just don’t know what to do with myself

So, for the last few weeks I have been feeling worse than ever. I realise it seems like I have been sick for ages, and I have, but after a few months of tests it was decided I had Sarcoidosis and after four months off work I started relevant meds and went back to work. The first couple of weeks were fine, I felt energised after making sure I has enough rest, good food, supplements, meditation and lots of water. Then, it all started to go down hill, I was really worried that the sarcoid was starting to get worse again so off to the doctor I went, she arranged an emergency appointment with my Rheumatologist, a few tests later and she talked through my symptoms, chronic pain, extreme fatigue, swollen joints, weight gain and she told me I had Fibromyalgia. I had already started crying at this point, I rarely cry, but the despair was starting to engulf me, I was sick and tired of feeling sick and tired and here was another bloody illness to manage. The list so far in order of diagnosis starting from when I was 20;

Osteporosis

Coeliacs Disease

Bursitits

Autoimmune Hepatitis

Hypothyroidism

Sjogrens Syndrome

Sarcoidosis

Fibromyalgia

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The last four have arrived over the last five months. I am usually so in control of my illnesses, a responsible patient, participatory in my treatment, a really honest and open dialogue with my doctors, I know my illnesses inside and out and they don’t frighten me. I listen to my body and take all in my stride, I’ve never been the type for hysteria.

The Sarcoidosis diagnosis was a relief as we had been considering cancer, Sjogrens is liveable with, dry eyes,mouth etc, the Hypothyroidism is a little more complicated but I am monitored and all is in is order but the Fibromyalgia – I’m not so keen.

The majority of my illnesses are chronic, and those ones are in remission, apart from the Fibromyalgia and from what I can lean it is a difficult one to manage. There are no medications or cures, I have been referred to the Pain Clinic to discuss subtitle medication to enable me to function, but as is always the case nothing is that straightforward. I am allergic to some of the main types of pain meds, the one that don’t really interfere with everyday life, so they are off the menu. Now I shall have to wait and see what they can suggest. I have been signed off work for two more weeks as some of my meds have been adjusted to compensate for the Fibromyalgia and the pain and exhaustion is overwhelming.

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I cannot imagine living like this for the rest of my life and I am panicking like mad, I’m not used to feeling so out of control, usually I just knuckle down, learn all I can about my illness, my body lets me know what I need to and I get on with it. This time its not that simple, nothing I do makes me feel better or more able to cope, I can’t sleep as my mind is swirling, being inside doesn’t help, being outside doesn’t help, reading about it doesn’t help, being with people doesn’t help, being alone doest help, reading, radio, tv doesn’t help,the meds don’t help, and I am worried about the future. What if I become too sick to work, I am a single parent, how can I pay the mortgage? I’m meant to start my Phd in September having deferred it from the beginning of the year due to the Sarcoidosis, what If I’m too sick to start it? My daughter is five, I don’t want her to think of me as ‘sick’ or having the mummy that always needs a ‘rest’. My mum was a single parent and she was sick a lot when I was little and I remember how frightening that was for me. I am becoming depressed, I know that, I can feel it, but I cant seem how to crawl out of the deep well I am falling down, time is running out, I can’t afford to spend what little energy I have trying.

Is this it? The pain may be manageable but the exhaustion? It is crippling and completely uncontrollble. On social media those suffering with chronic illness use #spoonie to identify relevant tweets, this is based onthis article written by Christine Miserandino,  I highly recommend you read it, it is the best explanation I have ever come across (and it uses spoons to explain everything – brilliant).

 

 

 

The Big (gluten free) Apple

It has been many years since I flew anywhere – business or pleasure- so an impromptu invitation to New York was firstly, a complete surprise and secondly, a very welcome break from ‘life’. Being a grown up has been very trying recently – divorce, solicitors, finances – and an escape to a new destination was, literally, just the ticket.

Dont get me wrong, I have travelled quite a bit, my first plane journey was at the age of eight, all on my lonesome, visiting my father who lives very far away (I am the product of divorced parents). In those days your mum handed you over at check in, the nice air stewardess put an ID hanging from a piece of string around your neck and you amused yourself in Duty Free until they found you and put you on your flight.

But I digress. My point being that I love travelling but for some reason have never made it to New York. The only places in America I have visited are Miami – beautiful but expensive – and Las Vegas for my honeymoon (see reference above to divorce! Not that I’m blaming Vegas). I see a clear theme running through these detention choices; they are all locations for the CSI series but that really wasn’t why i chose them. (Ps. I adore CSI, Team Grissom).

So I had four nights and three days to make New York my own. My boyfriend was officially ‘working’ so I was left to my own devises on Friday and then we spent Saturday and Sunday together. For those of you who don’t know, I am a planner, not a “at 9am we are doing this and then we must be at place a. by 2pm’, I take a more ‘organised spontaneity’ approach.

Firstly, I found all the yummy restaurants and coffee places I wanted to try out and then I left the rest to chance. I marked them all very clearly on my map (goodness, am I overly organised?). The reason for this was two fold; I love love love food and I have Coeliacs disease (an intolerance to gluten – barley, wheats, oats and rye), it is a serious disease that is just miserable if you don’t adhere to a gluten free diet, and the long term consequences are grave. So I can’t just go with the flow and eat where ever the fancy takes me therefore I have to be organised.

From the research I did, and the recommendations from fellow gluten freers, New York had a great variety of paces to eat at, top of my list was Lilli and Loo on the Upper East Side, a Chinese restaurant with a gluten free menu. I tweeted with them to confirm they still catered for gluten freers and they sent me a copy of the dedicated gluten free menu which I kept drooling over. In fact, I was so excited about having Chinese food, usually impossible because of the wheat in soy sauce and wheat batter used in some dishes, (including cross contamination issues, ie frying gluten free food in a fryer in which gluten covered items were cooked renders every thing contaminated with gluten) that I planned dinner there twice.

The other big things on my list were pancakes and waffles and I was lucky enough to find two places, Blooms, an old skool diner, around the corner from my hotel, and Friedmans in Chelsea Market. They both had gluten free menus and I tortured myself for ages regarding what I’d choose and, as US portions are simply huge, I wasn’t sure i’d be able to get through more than one dish at each place. That’s where my boyfriend always comes in super handy, I get him to order something else that I’d like to try and then share his. He is a good man, he is not coeliac.